自闭症 Autism Spectrum Disorder (ASD) 资源
在旧金山湾区,我收到了很多父母们的问题和求助,每次和特殊需要家庭的爸爸妈妈们相聚,我的内心都一次次被感动。
整合了各种资源后,我终于请到了我以前在Kaiser医院儿科的老同事,现在Kaiser医院自闭症检测科的Burton博士,来我们诊所进行自闭症和其他儿童情绪行为问题的诊断。专业的诊断和高质量的诊断报告很重要,因为只有这样的诊断书才会被医院,学校,和社会服务系统接受,才能帮助孩子获得批准,得到所需要的资源,例如ABA服务。
在我们实习生的配合翻译下,我们正在帮助更多的双语家庭了解自闭症,确诊自闭症,准确理解更专业的诊断报告和后续治疗建议。Burton博士在美国斯坦福大学自闭症中心和美国军队医院受过系统训练,不但对诊断很在行,还很擅长自闭症家长的教育和支持。我们之后整合了更多的材料后,会开展更多这样的社区服务。
感谢网友们和Lynn Hwu, PsyD, BCBA的整理推荐。资源还会不断更新中。
中文资源
Support for families of children with disabilities 中文工作人员
Regional center 中文工作人员
Autism support network 选择中文或者中国地区
中文的书籍资料请参考这个链接
中文的自闭症相关的公众号:
“大米和小米”
“以琳星家园”
英文资源
SocialPrograms
Via Services
http://www.viaservices.org/services/altitude-via/fall-winter-spring?gclid=CjwKEAjw7svABRCi_KPzoPr53QoSJAABSvxf9TvhItdRdtDS5-xCjxasGanPil8mvMMzeljGS9e5wxoC6I_w_wcBServices
Autism Support Network
http://localmarket.autismsupportnetwork.com/Summer_Autism_Programs_San_Jose_CA-p1561043-San_Jose_CA.html
After School Programs
https://www.autismspeaks.org/resource-guide/by-state/121/After-School%20Programs/ca
Camps
https://www.autismspeaks.org/resource-guide/by-state/126/Camps/CA
Social Thinking
https://www.socialthinking.com/Clinics/San-Jose
EvoLibri
http://evolibri.com/
Community Advisory Committee for SpecialEducation in Palo Alto
http://cacpaloalto.org/information-center/palo-alto-area-resources/social-programs/
Services
San Andres Regional Center (SARC)
300 Orchard City Drive, Suite 170, Campbell, CA95008, 408-374-9960
www.sanandreasregional.org
Bay Area Autism Nonprofit Guide
http://www.sfautismsociety.org/bay-area-autism-nonprofit-guide.html
Education,Research, Advocacy, Support
Autism Speaks
https://www.autismspeaks.org
Parents Helping Parents
http://www.php.com/
PHP Events:
http://my.php.com/events?combine=autism&field_php_sponsored_value=All&date_filter%5Bvalue%5D%5Bdate%5D=
Autism Society
http://www.autism-society.org/
NationalAssociation of Councils on Developmental Disabilities
www.nacdd.org
HomeSchooling
PHP Events
http://my.php.com/events?combine=&field_php_sponsored_value=yes+&date_filter%5Bvalue%5D%5Bdate%5D=&field_tags_tid=766&field_presented_in_value=All
Work
Autism and Employment
https://www.autismspeaks.org/family-services/adult-services/autism-and-employment
https://www.autismspeaks.org/sites/default/files/docs/employment_tool_kit_parent_booklet.pdf
Work in progress: An inside look at Autism’sjob boom
https://spectrumnews.org/features/deep-dive/work-in-progress-an-inside-look-at-autisms-job-boom/
Volunteering
Volunteer San Jose
http://www.sanjoseca.gov/Index.aspx?NID=211
Talk About Curing Autism (TACA)
http://www.tacanow.org/family-resources/volunteering-opportunities-for-people-with-asd/
LegalMatters (Conservatorship,Guardianship, Trusts)
Overview:https://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit/legal-matters
Academy ofSpecial Needs Answers
www.specialneedsanswers.com
Transition Matters: From School to Independence
Supplemental Security Income (SSI) vsSocial Security Disability Insurance/Disabled Adult Child Benefits (SSDI)
http://www.specialneedsanswers.com/three-big-differences-between-ssi-and-ssdi-14866
U.S. SocialSecurity Administration
www.ssa.gov
SocialSecurity Income
www.ssa.gov/disability
EligibilityInformation
www.ssa.gov/ssi/text-eligibility-ussi.htm
In home support services (IHSS)
http://www.disabilityrightsca.org/pubs/549301.pdf
Autism Speak: Adult with Autism: Whatservices and Program are Available at Twenty-Two?
https://www.autismspeaks.org/family-services/community-connections/adults-autism-what-services-and-programs-are-available-twenty-
ASD Board in Care
Autism Society
http://www.sfautismsociety.org/housing-options-for-adults-with-autism.html
Housing and Community Living
https://www.autismspeaks.org/family-services/housing-and-community-living
Housing: Community Living (GroupHomes/Supported Living)
http://www.new-horizons.org/hougrh.html
Group Homes and Residential Supports forPeople with Autism
http://foundationforautismsupportandtraining.org/groupHomes.html
Pacific Autism Center for Education(PACE)
http://www.pacificautism.org/programs/residential-services/
Autism Society Residential Options
http://www.ieautism.org/teen-adult/residential-options/
Books
书籍目录还可以参考我们的另一篇总结:ASD自闭症谱系:家长孩子阅读书目
如果你的孩子,需要自闭症确诊测试,ADHD/IQ测验等,或者需要心理/沟通/语言方面的干预治疗,欢迎寻求一三心理诊所的服务(线上线下,心理咨询,心理测试,药物治疗,语言治疗,等等)。
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